Month: October 2026

  • The 30 Minutes that reminded us things can go wrong.

    Last month we took the boys to a mountain called Vall de Núria. The plan was simple on paper. Ride the Blue Train up the valley, which is the only way to get there. Ride the cable car over the pine trees. Sleep in a wooden cabin on the French side. And make memories in our Road trip.

    Simple on paper. Never simple in practice.

    The train ride that made Guille light up

    We parked the car and waited for the Blue Train. We started from the very first stop, because Adri and Guille wanted to see the whole climb and I was not about to deny him a single meter of track. So Luis and I planned a trip that included their interests.

    The whole way up, Guille could not stop smiling. The Blue Train reminded him of Eric, the blue train from one of his favorite shows, Titipo. Imagine being six years old and seeing one of your characters alive in front of you for the first time. The look on his face is one of those things that I will keep in my heart for the rest of my life. And specially if the words: “Blue Train Eric” came out of his tiny little mouth. Music to our ears.

    Adri sat quietly, watching the mountains come up to meet us. He is twelve. He does not light up the way Guille does, but he feels things just as deeply. He wanted the whole ride. Every bend. Every meter. He got what he came for. They both did.

    Almost an hour of train, going up. I sat with Luis, watching their faces, remembering why we do this.

    At the top

    The Valley is breathtaking, so much nature, families, a lake. We decided to explore it all. I had packed sandwiches, just in case the food up there was not something the boys would eat. I did not know what was going to be available, and I would rather carry a backpack full of Ham, Boiled eggs and Sandwiches than find myself with two hungry boys on a mountain (and a mom too). We ate the sandwiches.

    The cable car took us even higher. We rode up with it, and decided to walk back down. Once we were up there, the four of us just stopped. We took deep breaths. We watched a family of marmots in the grass.

    Going down the mountain, we saw horses along the way. It was one of those family moments that lands quietly. Nothing dramatic. Just all of us, together, in the middle of a mountain we had never seen before, taking it in.

    Alert, even on a good day

    I want to tell you the truth about what else was happening in my body while I was on that mountain.

    I was on alert the entire time. Guille has a tendency to just start running when he feels free. The mountain was steep. The path back down had sudden drops. I did not take my eyes off him for more than a few seconds at a time. I could feel the vigilance in my shoulders. We took turns holding his hand.

    That is autism parenting. The good days are good. The alert does NOT switch off.

    I think most moms carry some version of this. For autism moms, it is turned up a level. Even in the most beautiful moment, there is a part of me that is scanning. Measuring the distance between my body and his. Planning what I would do if he started running toward the edge.

    I write this not to make the moment sound heavy. The moment was beautiful. I write this because if you are an autism mom reading this, I want you to know that your constant scanning is not an overreaction. It is love. It is your love doing exactly what it was built to do.

    The first night went sideways

    The day before going to the mountain, we stayed the first night in a Sky Lodge in France. A wooden cabin tucked into the trees. We arrived after school on a friday, which meant we got there at the end of a long week. Travel day, school day, mountain day, all on top of each other.

    The cabin was fully made of wood, with ski paintings on the walls because people come here to ski in the winter. The whole look of it, combined with the long day, combined with an unfamiliar space, was too much for Guille.

    He had a meltdown.

    I am going to tell you what that looked like, because I think it matters.

    A few years ago, this meltdown would have been something else entirely. It would have been louder, longer, more frightening to all of us. Highly considering going back home. He is six now, and he is learning. The meltdown that night was shorter. He hit stuff a couple of times, though honestly it felt more like pressure than hitting, if that makes sense. He threw a couple of things into the air. Thirty minutes.

    Thirty minutes used to be the beginning. Now thirty minutes is sometimes the whole thing.

    I notice this. I let myself be proud of him for it, even in the middle of it.

    What we did

    Luis and I sat with him. We did not reach for the phone, even though we both know the phone is regulating for him. Here is why. We lost a tablet in the summer when he threw it into the air during a hard moment, and I was not going to lose another one. So we trusted him and gave him space with the things we knew he liked, nothing he could break.

    We stayed close to him but giving him space. We did not fix. We did not rush. We did not ask him to stop. We just stayed.

    Here is the thing nobody told me before I became an autism mom. Sometimes the most powerful thing you can do for your child is to not do anything at all. To stay in the room. To not look at your phone. To not reach for a bottle of water or a snack or a solution. To just be a steady body in the space with them.

    And then, almost like a switch flipped, he smiled. He got up. He started going up and down the cabin stairs, laughing. We did a video for keepsakes. He wanted me to watch him. I watched him. I think I smiled with my whole chest. That night he slept it the top floor of the cabin happy and safe, alongside his brother.

    The rest of the trip was lovely. Trains, cable cars, pine trees, a mountain town.

    What it taught us

    A lot of what we have learned over years of traveling with the boys got us to this trip. The confidence to go. The confidence to prepare. The confidence to try somewhere new. The willingness to accept that one night can go sideways and the next day can be everything you came for.

    That is what our new book, Autism: Our Travel Adventure, is built from. Every tool, every strategy, every social story is something we have actually used in a hard moment. The book is us handing families everything we had to learn on our own, because I remember being the mom who did not know where to start, and I would really used a book like this when my Adri was a toddler.

    Here is what I would say to any autism mom about to travel with her child:

    • Pack safe foods. Breakfast and dinner. You will thank yourself.
    • Build social stories for the parts you know will be hardest.
    • Prepare for the first night to be the hardest. The whole travel day lands on kids at once.
    • Stay. Do not fix. Do not rush. Just stay with them.
    • Keep the regulating tool safe. If your child throws things in hard moments, do not hand them something you cannot afford to replace.
    • Thirty minutes of hard can turn into days of beautiful. I have seen it over and over.

    Vall de Núria was worth it. Guille rode his Blue Train, and his face lit up every time Eric came back around a bend. Adri watched the mountains pass through the cable car window and said almost nothing, which from him is a kind of yes. We ate sandwiches on a mountaintop with a family of marmots in the grass. And were luck to find pizza in the canteen. We came home with photos I will keep for years, and with a story I needed to tell.

    Traveling with autistic kids is not easier because you prepared. It is possible because you prepared.

    That is the difference the book is here to make. Autism: Our Travel Adventure launches October 27. If this trip could happen with planning, yours can too.
    Keep Posted for updates.

    Learn more about the book here: https://lovingpiecesbooks.com/autism-our-travel-adventure/

  • A Month In, and We Are Still Figuring It Out

    I have not written about Adri starting high school yet, and I think that is because we are still in the middle of it. He started in September. We are a month in. Both of us, him and me, are still getting the hang of this.

    I did not want to write a tidy update when it is not a tidy season.

    The summer of quiet worrying

    I spent the summer in a kind of low background worry. It was not active. I was not sitting on the couch spiraling. It was more that it lived in the back of my head all the time, a little hum I could NOT switch off.

    What I remember most clearly is wanting it to happen already. I wanted to be past the unknown. I wanted him to be in the building. I wanted to start working with him from the real place instead of the imagined one. Worry does not do well with waiting, and the summer was a lot of waiting.

    I was also worrying about Guille.

    He started primary school this year. First grade. New classroom. New classmates. A different lunch playground. The teachers at his school already know him, and they knew Adri too, so I keep telling myself he is more protected. He is in two classrooms, one special education and one regular class, and both have adults who know him. That is a gift and my peace of mind.

    But Guille does not communicate the way most children do. If something feels wrong, he is not going to come home and tell me in sentences. I will have to read his body. I will have to listen to what the teachers see. I will have to trust that the people around him are watching the small signs. And I am sure they do.

    Worrying about Adri is one thing. Worrying about a child who cannot always tell you what is wrong is a different kind of worry entirely. And even though Adri comunicates more he is not going to tell me if something good or bad happened at school.

    What high school actually looks like

    Adri walked into a school with one hundred and fifty new students from different schools. He is twelve. He has a very specific way of communicating, and people do not always understand it the first time if they do not know him.

    That was the part that woke me up at night.

    I know Adri. I know what he thinks about. He is not thinking about which clothing brand is cooler or whether this notebook is better than that one. The things that come up in teen conversation are not what live in his head. He is thinking about history. He is thinking about his trains. He is thinking about what day he has swimming and what day he has therapy. He is building his week in his head like he builds everything in his head, carefully and completely.

    The social gap between him and his classmates is becoming more visible this year. His old classmates who came with him to the new school are turning into teenagers. And I can see that even though they do care for him they are growing apart, and that breaks my heart in pieces.

    I watch this. I do not know what to do with it some days.

    What is helping

    The school gives us an agenda every day. The teachers who from day one have shown so much care, empathy and willingness to help write down what happened during school day. This is new to me, and it is one of the quiet gifts of this year. Adri is not going to sit with me after school and tell me about his day. He is getting better at it, slowly. I am getting better too. I have had to learn which questions do not stop at yes or no. Questions that make him tell me a little more than he was planning to.

    The teachers are the other thing that is making this possible. They are amazing. When something good happens, they tell me. When something not so good happens, they tell me too. It goes back and forth. I advocate for him. They are okay with it. That is not a given with every school.

    I am learning that part of being Adri’s mom in this new chapter is being in constant conversation with the adults who see him when I cannot. I used to think that handing him over to school each day was a kind of letting go. It is not. It is a kind of handing over that requires more communication, not less.

    Where we are now

    Adri is settling. Guille is settling. We as parents are settling. These are three different kinds of settling, and they are all happening at the same time, and none of us are quite done. Whom are very happy are the grandparents that they get to brag about Adri being in High School and Guille starting first grade.

    I will write a cleaner update at the end of this school year, when I have more of the arc to tell you. For now, this is the honest middle.

    A note on Guillermo and the book

    Something I did not expect this year is that I have been using our book Autism: A New School Year more with Guille than with Adri. Guille is in a new classroom with new routines, and the social story format has been exactly what he needed to prepare for the week ahead.

    Adri has grown past some of what that book was built for, and that is its own kind of pride. Guille is right in the middle of it.

    Books, like kids, meet you where you are.

    With Love,

    Dalisse

  • I Have Been Thinking About the Rami All Week

    Last week, the news here in Catalonia was heavy. A twelve-year-old autistic boy went missing from his home in Granollers during a thunderstorm. He had fled the house, frightened by the storm. Ten days later, his body was found on a beach in Sitges.

    I want to start by saying to his family. We are so sorry. All of us. The autism community in Catalonia and far beyond held you in our hearts for ten long days, and we are still holding you now.

    The ten days

    While the search was happening, my phone would not stop pinging. The autism community here in Catalonia got together within hours. People I had never met were sharing his photo. People were asking in group chats, have you seen this boy, have you seen this boy, where was he last. Volunteers were going out organized by the local firehouse. Local parents were walking the areas he might have crossed. We were all one wide net of autism families trying to help bring someone else’s child home.

    That is the part of the story I want people to know. Our community moves. Fast and with love. A missing autistic child is not just that family’s crisis. It is ours too.

    The storm

    The night he left home, there was a huge thunderstorm. Not a small one. The kind of storm where our own house in Barcelona shook and the lights flickered.

    For an autistic child with sensory sensitivities, a storm like that can be unbearable. Imagine your nervous system already running loud, and then the sky itself turns into noise and light. Your home does not feel safe. Nothing feels safe. The instinct to flee is real.

    I am not going to pretend to know exactly what happened to him. I did not know him. But I know enough autistic kids, and I live with two of my own, to know what overwhelm can do.

    The comments

    I read a lot of the comments under the news. Most were full of love. Hearts, condolences, families saying they were praying for his safe return. Many were educational, trying to tell people that autistic children have a known pull toward water. That autistic children can elope when they are overwhelmed.

    Then there were other comments. Where was the mother. Why did the boy escape. Something is wrong with this story. There is something they are not telling us.

    I understand those comments more than I wish I did. Not because they are right, but because I know where they come from.

    If you have never lived with an autistic child who elopes, you cannot imagine what it is like. You cannot imagine installing extra locks on your own front door, locks that are turned the wrong way around so they can only be opened from the outside. You cannot imagine the way your heart stops every time you cannot see your child for ten seconds in your own home. You cannot imagine sleeping with one ear open your whole life.

    My kids have a tendency to run when overwhelmed. We have taken measures I never thought I would take as a parent. And still, I know in my bones that one bad night, one open door, one storm, could be our story too.

    What I need people to understand

    Autism in our family and in that family in Granollers looks like constant vigilance. It is not neglect that leads to a child disappearing. It is the opposite. It is the exhaustion of parents who have been watching their child so closely for so long that the one moment they look away becomes the moment everything changes.

    If you have ever typed a judgmental comment under a story about a missing autistic child, please read this. We are already doing everything. We are already afraid. We do not need you to look at us from the outside and decide what we should have done. If you don’t have something nice to say, please don’t.

    The thing I want other autism parents to hear

    Teach your child to swim. Early. Even if they do not love the water. Even if lessons are hard. Even if it takes years.

    Autistic children are drawn to water. The statistics on drownings in our community are heartbreaking because they are so avoidable. Swimming lessons, from as young as you can start them, are one of the most important investments you will ever make in your child’s life. Both of my sons started early. Guillermo is in the pool every week, and still does not know how to swim very well. It is not a hobby. It is a safety plan.

    For the family in Granollers

    I do not know you. I will probably never meet you. But I have been thinking about you every day since the news came. Your boy is remembered. Your boy is being carried in a lot of hearts right now, more than you will ever get to see.

    To the autism community here in Catalonia and everywhere. I am so proud of how we moved. And I am so sorry that we did not get the ending we were all praying for.

    Please, when you talk about this story at your dinner table, lead with love. The people in the news comment sections are listening too, and some of them are autism parents who are reading every word and wondering if the world would blame them next.

    I will be thinking about this family for a long time.

    With love,

    Dalisse